Hemimegalencephaly Support Group

Sharing the journey...

never alone! 

The Hemispherectomy Support Group was created to support the familes of children diagnosed with Hemimegalencephaly (HME) and the less severe diagnosis of Cortical Dysplasia (CD). 

The mission of the HSG is to empower families to better and more efficiently make informed decisions regarding their child's total care by providing up to date information on medical centers, related medical issues, current research and best practices regarding surgery, therapy and general care, links to valuable local and national resources, and peer-to-peer support. 

The HSG strives to be a place where HME families can find not only information, but support, hope and encouragement from each other.   

WHY HSG?

The HSG takes the combined experiences of past and present families of children with HME/CD and assimilates and condenses the knowledge and access to resources they have gained in their individual journeys for sharing with not only each other, but all future HME/CD families for the purpose of helping new HME families just beginning the journey.  The intent is to provide new families with educational, medical and support type resources, as well as stories of hope and perserverence in one location.  The HSG also serves to link all families, old and new, together for the purpose of sharing ideas, challenges, successes and general peer-to-peer support.  Please join us.  We would love to have you!

JOIN US TODAY!

Now that you understand just what the HSG is about, won't you tell us about yourself?  Please email membership@hemimegalencephaly.com today to join our group.  There is no fee.  Donations are accepted to keep this site opperating, but are not required.  Please include your name, childs name, age, diagnosis, birth month and year, and an email address to receive notifications or news related items.  Your info will NOT be shared outside of our group at any time.